In an effort to bring more awareness to narcolepsy, Narcolepsy United has spearheaded several initiatives for FDA action and information circulation.
Patients and loved ones are invited to take this anonymous confidential survey, based on the FDA's questions to capture the variations in patients' experiences (about 15-20 mins to complete). Over 700 individuals have completed the survey so far; Narcolepsy United is aiming for 1,000 responses by September 24.
Narcolepsy United also has threewebinars coming up - topics include Understanding the FDA and Effective Communication Tactics. Registration is open and free to the public and the one-hour sessions can be viewed from home.
Attend the Sept 24, 2013 meeting in person or via webcast. More information available on the event website.